Kezia and I are both just so frustrated and stressed out. we remind ourselves to take deep breaths and relax. Our minds need to be clear. The bottom line is we are terrified. Our little girl is so sick and she just does not deserve this. She is so full of life and has such a strong personality. She loves learning, she loves coloring and playing with blocks. She loves lining up all of her stuffed animals and giving them each just a little bite of cracker and then checking their heart rate with her stethoscope. :) she loves laughing and doing silly things with a smile on her face and giggling all the way. She loves curious george and elmo.. also loves singing the cat in the hat song. She loves singing ole macdonald and making animal sounds. She is just such a smart little girl for 18 months old. She loves the christmas tree and playing with the ornaments. she loves the multi colored lights. She loves playing with her toy balls and rolling them around and throwing them. She loves picking up our phone and putting it up to her ear and talking. She loves talking. she loves her puzzles. she loves getting a book for us to read to her. she loves turning the pages by herself :) she loves the texture books. She loves dancing and listing to music. All kinds. She loves playing with other kids. she loves playing with and tormenting Fallon, her puppy.. well dog. She loves being outside and playing with her outdoor toys and climbing the ladder of her little house outside. She loves swinging in her tree swing. She loves riding on the riding lawnmower (1st gear low throttle no blades running). Although its referred to as the "tractor". She loves feeding herself with a spoon. She loves holding the bottle herself. She loves drinking out of cups with a straw. she loves her mommy and daddy. she loves her mamaw and papaw. she loves her grammy and grampa... "ummpa". she loves fun and bright colors. she loves going out to eat and being around people. she loves dogs. she loves having fun. she loves climbing the stairs and being very accomplished when she reaches the top. she loves playing picky boo.. she loves looking for your belly button and expects you to laugh when she pokes it. she loves eating and trying new foods. she loves picking things up and looking at them in amazement. she loves showing you how much she has learned. she loves making other laugh. she loves showing off her pretty clothes. she loves helping. she loves playing with the horse & santa magnets on the refrigerator. she loves trying to open the refrigerator to take out a piece of fruit, she knows exactly where it is. she loves looking around for cheese.. loves cheese. she loves taking things our of the refrigerator and handing it to one of us.
she loves life.
I am a husband. A dad. A business owner. My wife's cancer relapsed. We have a 3 year old. Did I mention my kid died of cancer? I write about all of it.
This is the sweetest and most heart wrenching post. I am praying for you all fervently. Sweet, sweet girl.
ReplyDeleteThis is beautiful Mike. Thanks for sharing.
ReplyDeleteI can't imagine how hard it must be to see your child suffer. I hope the holidays brings good news and healing powers for you. much love
ReplyDeleteGod bless that sweet little angel. I pray for continued strength for both of you. God bless your family
ReplyDeleteIt hurts me to see that she is going through so much! I pray god to please sure her cancer and keep her healthy! I pray.... try not to cry.
ReplyDeleteThere is a reason why this beautiful little girl was given to you two. The "loves" she has are because you taught her how. She has a very full and wonderful life for such a little girl, no doubt enhanced by her need to be strong in the face of pain. I hope you parents can find strength and pride in the amazing job you are doing for your baby girl. Keep up the remarkable work.
ReplyDeleteI love her. My heart aches for you. Keeping you in my prayers.
ReplyDeleteMike, I know that there is nothing anyone can say that will make anything 'better'. Know that your daughter, your family, your sharing your terror and the reality of this horror with the world so painfully clearly is part of how Saoirse will change the world for so many families and children like yours (and mine). That doesn't matter right now though, I know. I so deeply hope that she turns a corner and finally catches a break. You are right, she doesn't deserve this. Following your family, well, there is absolutely nothing fair about life for you all right now. I cry for you and beg that this awful disease finally gives up and lets your little miracle to enjoy the rest of a long life that she (and both of you) deserve. Lean on each other when you can so that you can get through this together.
ReplyDeleteI pray for you all. You guys are an amazing family and you are right...she does not deserve this. She is strong little baby. I pray you get some answers and some relief so you can just have some fun time tog. Thank you for sharing your heart with us.
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