I have been feeling better emotionally. I think it has a lot to do with the videos I have been making. I have been looking through a lot of videos and they make me smile, cry and laugh... My series of "she loved" has been making a difference in my life and helping me remember all the good things.. this is reminding me just how much I learned from Saoirse. Although I am feeling better, I have my moments. The videos are also stirring up some anger. I am angry she was taken from us. I am angry there isn't much being done in the Neuroblastoma world because of lack of funding and support. I am just angry.
I miss my daughter
Saoirse always seemed to find ways to help her feel better and to just enjoy life. We learned early on that Saoirse loved to dance to music. She had a very distinctive dance. I remember watching her eyes when she danced.. they were full of joy, freedom, amazement and I could just tell that she felt good. She was free of what ever ailed her at the time. In the following clip, she had just endured almost a week of Chemotherapy, yet she didn't let it get her down. Saoirse would seek out to find her musical walker.. she loved that thing.. she played with it all of the time.. The video serves a couple of purposes.. We want to share her spirit with others. We want to spread awareness of Neuroblastoma and much needed assistance to protocols and studies. If this video isn't working on your phones or iPads try watching it on youtube at this link: http://youtu.be/6LcNiBYz4SI