Saoirse is more comfortable now because she is on a Methadone for pain plus morphine when needed. We started radiation last night and she did very well with it. Saoirse had a good night as far as sleeping goes, however would not eat or drink (due to the medicines she is on). We are consulting with nutrition today to see about a feeding tube because she needs her energy to fight this cancer. The other problem is that the antibiotic she is on makes her nauseous. Saoirse is a very strong little girl.
We were suppose to bring her for her radiation today at 8am, however the machine is down so we are waiting. I know it is a machine, but she needs this radiation to have any chance of survival and quality of life. Waiting an hour or so is not much of a big deal in the big picture of things, however she is NPO since midnight and she can't even have juice now until after the radiation. She has to be sedated every time. Saoirse will also have radiation at 5pm. She will be getting it 2x a day for 7 days plus chemotherapy. We will do anything to help her.