Ok. I am sure there are not many people reading my blog anymore - thats ok because I haven't published my writing much. I do write, just don't publish much.
I need to publish this though. I saw how there is state police in another state selling t-shirts and raising money for the boston one fund. I get that the families need help. Seems there will be and is plenty of help.
What gets me is there were a lot of stars who showed up for special concerts to raise money, extra media coverage and people keep pouring money into the fund.
While I have understanding and sympathy for the families who lost family members and who were hurt with life altering injuries, I get frustrated because all of the pediatric cancers are getting whitewashed again. I watched my own child die a very violent death - I see her death every morning at 630 am.
What I wish - A fathers wish - is that some stars would come together and have a special concert for Neuroblasotma - a pediatric caner that kills a lot of kids each year. Not sponsored by any of the conventional cancer groups because contrary to popular belief they do little for Neuroblastoma or any pediatric cancer for that matter. We need someone to help us raise a lot of money to help kids with cancer. I challenge stars to actually do their own research and do this because its the right thing to do.
Right now Kezia is planning a dance a thon - More details to come soon. She is doing her part, working hard and doing all the work to organize a fundraiser. She could use some big stars to help raise attention and a lot of money for the trial (to be announced on her website this week) they will be funding.
It is a 501 charity and we make NO PERSONAL MONEY from the foundation.
Its the not-for-profit scientist and pharmaceuticals who are working on cutting edge treatments - including NON TOXIC and LESS TOXIC treatments. The government forces you to make your child take Chemo - for Neuroblastoma that is more times than not very deadly.
As a parent - I am frustrated because I hear every day of families struggling, kids in pain and getting sicker and chemo keeps getting pumped into them. No way a child's body can keep up with the poison. The chemo kills the immune system and has no way or encouragement to come back.
Everyone has heard of Breast cancer, colon cancer, pancreatic cancer, lung cancer -
Have you heard of Neuroblasoma? If not, look it up. Pass the word along. Share and help with awareness. What is it going to take to start getting people to pay attention?
Do I need to dress myself in orange and walk across the US?
Come on people.