Sunday, October 16, 2011
The choice is made
We have decided Saoirse's next phase of treatment is the 3F8 Antibody Therapy at Sloan. Their protocol requires another sample of bone marrow taken from the front of Saoirse hip. She has to have anastesia for this and I always get real stressed and nervous when she is sedated. This stress is higher now that she has no adrenal glands. We will have to give her a stress dose of hydrocortisone on the day of the procedure. We are getting prepared for the trip. It in and of itself is stressful. We have so much stuff to bring with us, and believe me it is needed. We are concerned about insurance. There is an extreme process to get this whole thing approved. I am not much into writing tonight, I am very tired and have to get up real early.